Date of Conferral

2020

Degree

Ph.D.

School

Human Services

Advisor

Sandra M. Harris

Abstract

Caregivers for children with disabilities may experience caregiver burden when transitioning their offspring to adult healthcare services. As the Latino population in the United States increases, so will the numbers of Latino caregivers of children with disabilities. This research described the experiences of Latino female caregivers who transitioned their children from pediatric to adult healthcare services. General systems theory was used to guide this research. The hermeneutical phenomenological approach was used to describe Latino female caregiver's experiences involving transitioning children with disabilities from pediatric to adult services. Bryman's 4 stages of data analysis were used to assist with thematic content analysis once data were gathered from interviewing participants. The following 5 themes emerged as a result of the data analysis: effects of the transition process on the caregivers, sources of information regarding the transition process, support received during the transition process, challenges during the transition process, and recommendations to assist caregivers during the transition process. Findings from this study provide information regarding the challenges that Latino caregivers experienced as they transitioned their children with disabilities into adult health care services. Human services and other professionals could promote social change by using the information to advocate for changes in policies and procedures that ease the process of transitioning children with disabilities into adult health care services, which would further promote social change by reducing the burden that caregivers endure when making the transition.

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