Date of Conferral

2-5-2026

Degree

Ph.D.

School

Health Sciences

Advisor

Compreca Martin

Abstract

This study explored how informal caregivers of colorectal cancer (CRC) gain access to supportive care services at integrated cancer care institutions. Although supportive care aims to improve the quality of life for patients and caregivers, there is limited research on how informal caregivers participate in distress screening, and no standard process exists across settings. This study used a qualitative phenomenological approach to explore the lived experiences of 10 oncology nurses with screening informal caregivers for distress and referring them to supportive care within integrated cancer care institutions. The Global Supportive Care Framework for Cancer Care served as the theoretical framework for this study. Key themes included caregiver access to supportive care, caregiver behavioral health assistance, a lack of honesty from caregivers, and responsiveness to caregiver needs. Findings highlight the need for a validated caregiver distress tool and clear policies to improve referrals and access. Caregiver-centered care most influenced successful referrals. Barriers included staff time constraints, caregiver reluctance to disclose distress, limited receptivity to referrals, and resource shortages. The findings of this study can inform practical improvements and support positive social change.

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