Date of Conferral

7-15-2024

Date of Award

July 2024

Degree

Ph.D.

School

Public Policy and Administration

Advisor

Gregory Campbell

Abstract

The problem this general qualitative study with narrative techniques addressed was the lack of empirical research about sarcoidosis mental health based on depression, anxiousness, and feeling lonely. Sarcoidosis legislation was also compared to current mental health legislation, which proposed mental health measures. This study aimed to gather secondary data of firsthand descriptions based on the impacts of sarcoidosis mental health aspects and review sarcoidosis legislation. Accumulated secondary data for this study were a collection of stories from doctors, diagnosed patients, and caregivers based on their narrative of the disease from a mental health perspective. In utilizing the advocacy coalition framework, this study focused on the coalition and its belief as it pertained to the theory. In referencing the narrative policy framework, this study focused on the narrative and its aspects in relation to setting, character, plot, and morals. Provisional and emotion coding were selected to analyze the secondary data and to illustrate the narrative of sarcoidosis mental health. In Vivo coding was also used to capture additional trends and researcher notes. Key findings confirmed that doctors, patients, and caregivers had knowledge of and had experienced the mental health aspects of sarcoidosis based on depression, anxiousness, and feeling lonely. A comparison of sarcoidosis legislation identified funding as the only corresponding factor with current mental health legislation. The positive social change from this study is the awareness of sarcoidosis and the noted mental health aspects, as well as the potential for updating and approval of pending legislation pertaining to the disease.

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