Date of Conferral

2023

Degree

Ph.D.

School

Public Health

Advisor

Tolu Osoba

Abstract

Existing beliefs and conceptions regarding sickle cell disease (SCD) have had a significant impact on the appropriate management of the condition, including self-care and psychosocial factors, particularly among African Americans. The aim of this study was to examine the influence of self-care and psychosocial factors on SCD-related outcomes among African Americans in the United States. The study was grounded in the self-care management theory and employed a cross-sectional, quantitative design. Regression analyses were conducted to explore the associations between self-care and psychosocial factors and SCD-related outcomes sample of 180 individuals. The results indicated three factors showed significant relationships for sickle cell pain frequency. These were coping behavior ability (β = 0.249, p = .049), hopelessness, and mood swings (p < .05) indicating they may be significant factors related to self-care and psychosocial factors, but not necessarily for overall health status and quality of life. This study highlights the importance of self-care measures in managing SCD-related pain, as a patient’s ability to manage symptoms significantly enhances their quality of life. The findings can inform the development of tailored interventions and programs that address the specific needs of African Americans with SCD, promoting more effective self-care practices and psychosocial support. The study will help care providers to focus on improving coping behavior and compliance in patients with sickle cell disease, thereby improving their self-care abilities.

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